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A positive response to our Endometriosis & Fertility awareness campaign.

In our ongoing mission to raise awareness of Endometriosis and its impact on fertility, our CEO recently penned a heartfelt letter to all Integrated Care Boards (ICBs) outlining crucial measures to support individuals affected by Endometriosis. We are delighted to share that the North West London ICB and their Individual Funding Request (IFR) team has taken a proactive stance and confirmed their commitment to considering these measures with their policy development group.


The North West London ICB serve a population of over 2.1 million people who live across the eight boroughs of North West London, including Westminster, Kensington and Chelsea, Hammersmith and Fulham, Ealing, Brent, Hounslow, Harrow and Hillingdon. The NWL ICB is responsible for delivering a wide range of services including mental health services, urgent and emergency care, elective hospital services, and community care. Now ICBs are legally established, clinical commissioning groups (CCGs) have been abolished.


The letter, which called for increased support for those with Endometriosis, emphasised the unique challenges faced by individuals at risk of fertility loss, severe disease, and low ovarian reserve. Having personally experienced infertility as a result of her delayed diagnosis, Our CEO highlighted the urgent need to allocate resources and funding to offer fertility preservation treatments, such as oocyte and embryo cryopreservation, to individuals with Endometriosis.


Furthermore, the letter urged ICBs to promote and support the integration of various medical disciplines to ensure comprehensive and holistic care for those affected by Endometriosis. By collaborating with reproductive health specialists and The Endometriosis Foundation, guidelines and protocols can be developed to offer medical interventions and counselling for those seeking fertility treatments, especially for those experiencing infertility (including secondary infertility), and those who find themselves involuntarily childless due to Endometriosis.


Education and awareness play a pivotal role in addressing Endometriosis effectively. Our CEO's letter called for an enhanced focus on educating healthcare professionals and the general public about the importance of early detection and timely diagnosis, which facilitates access to fertility preservation options. Additionally, investing in educational programs, training initiatives, and awareness campaigns can help debunk misconceptions, promote early diagnosis, and ensure timely interventions.

Lastly, the letter emphasised the significance of allocating resources and funding towards research initiatives focused on Endometriosis. By fostering innovation and progress in this field, we can advance our understanding of the condition, develop improved treatment options, and ultimately enhance the quality of life for those affected.

The response from the North West London ICB is heartening and serves as a beacon of hope for the future. By actively considering these measures, they have demonstrated their commitment to improving the lives of individuals with Endometriosis and paving the way for others to follow suit.

As we continue our advocacy and awareness efforts, we hope that other Integrated Care Boards across the country and beyond will be inspired by this positive response. By joining forces, we can create a powerful movement that brings about meaningful change, empowers those affected by Endometriosis, and ensures that they receive the care and support they rightfully deserve.

Together, let's build a future where Endometriosis is met with compassion, understanding, and comprehensive care, and where fertility preservation becomes a tangible reality for all those in need. Let this be the beginning of a transformative journey towards a brighter, more inclusive future for individuals with Endometriosis everywhere.



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