Our Founder's story
Carla’s journey with endometriosis began at just 14. Despite showing clear signs of the condition, her concerns were often overlooked and misunderstood.
It wasn't until she was 25, after two years of frequent hospital admissions due to unexplained pelvic pain, that she underwent an unnecessary appendectomy followed by a life-saving emergency surgery. It was then that she finally received a diagnosis of endometriosis. By this point, the condition had progressed significantly, affecting multiple organs and causing complications such as frozen pelvis and infertility.
Pictured: Carla and the late Sir David Amess photographed at House of Parliament.
Pictured: The Endometriosis All Party Parliamentary Group APPG first - members meeting held at Westminster.
Pictured left to right: Our founder; Carla Cressy, Shadow DEFRA Secretary - Victoria Atkins MP, & Advocate, Stef Williams seated during a round table discussion on endometriosis in the workplace @ 10 Downing Street
Over the years, Carla underwent numerous medical and surgical treatments to address the damage caused by endometriosis, including bladder reconstruction surgery, a temporary ileostomy (stoma), egg freezing, and a hysterectomy, which led to her entering surgical menopause at just 29 years old.
Sadly, her experience reflects the reality for many, as the average diagnosis delay for endometriosis in the UK is currently 8 years.
Pictured: Our founders story featured on Holland & Barretts digital screens partnership campaign.
Endo is more than just "bad periods"
For too long, endometriosis has been misunderstood, overlooked, and dismissed. Carla’s experience is not unique, it reflects the reality of millions who go undiagnosed and unheard, often for years.
Determined to change this, she took action. She founded an online support group that now connects thousands of women, she began holding educational talks in schools, and led a national campaign advocating for early diagnosis and better awareness.
Her efforts caught the attention of Sir David Amess, MP for Southend West, who became a dedicated supporter of her mission. On March 14, 2018, their work led to the formation of the Endometriosis All-Party Parliamentary Group (APPG) - a crucial step toward changing policy and public understanding.
But there is still so much more to be done. Endometriosis is not just a painful period, it is a serious health condition that deserves recognition, research, and reform.
Through the Foundation, Carla continues to push for a future where no one is ignored, and everyone gets the care and support they need.
Pictured: Our members photographed during our official launch event in Westminster.
Pictured: Our members photographed taking our Campaign to parliament
Pictured: Our members and supporters photographed at Westminster.