Updated: Sep 24
Tuesday, March 7th, falling on National Be Heard Day. Held during Endometriosis Awareness Week.
The Endometriosis Foundation is a not-for-profit organisation whose mission it is to create a future where Endometriosis is recognised and understood. The charity founded out of passion to its cause, is working towards a future where everybody with Endometriosis receives the care and support they need, where those affected by Endometriosis are understood, valued, and empowered members of society.
As the snow fell outside, The Endometriosis Foundation official launch couldn’t have been met by a warmer room filled with excitement and positivity.
After passing through policed checkpoints, metal detectors and armed security, our guests stepped inside one of Westminster's hidden treasures, the Attlee and Reid Room. This elegant space is located in the House of Lords overlooking the River Thames and Black Rods Gardens.
This event marked the formal launch of The Endometriosis Foundation's initiative to accelerate the availability of trusted and transparent information, awareness, education and support of Endometriosis by taking action on becoming the first choice organisation for people with Endometriosis.
The event was not only a fantastic opportunity to introduce the charity, but to also shine light on the recent campaign which is to raise awareness of Endometriosis and the effects the condition can have on female fertility.
The Endometriosis Foundation Chair, along with the Chief Executive of the Royal College of Obstetricians and Gynaecologists (RCOG), trustees, doctors, MP’s, health experts and innovators, members and volunteers, and of course our founder, Carla, all gathered to celebrate the launch with a special touch of personal stories to share of their connection to the cause.
Anna Firth - MP for Southend-West paid tribute to the late great Sir David Amess, the former MP for Southend-West who was Chair and Trustee of The Endometriosis Foundation. David was a hugely influential figure in the growth of The Endometriosis Foundation and was incredibly passionate about the cause getting the charity started.
Endometriosis is under-diagnosed, under-studied and misunderstood.
Endometriosis is a common yet widely under-recognised condition affecting more than 1 in 10 women and those assigned female at birth usually of reproductive age. Despite being as common as Asthma and Diabetes, it currently takes the average person between 7-9 years from the onset of symptoms to achieving a diagnosis of Endometriosis, with many sufferers visiting their GP and doctors in hospital settings multiple times before their symptoms are taken seriously.
The condition can carry a lot of uncertainty and symptoms which can have a significant impact on a person's quality of life, affecting school attendance and the ability to pursue a career. The symptoms can impact fertility, bladder and bowel health, and relationships, and it can often result in feelings of isolation and depression. There is currently no cure.