If you would like to share your story, visit our contact us page, alternatively you can get in touch by emailing hello@theendometriosisfoundation.org

Meet Gerry

"Despite complaining to the doctor of stomach pains and unsettling bowel habits, I was not officially diagnosed with severe endometriosis until I was 38 years old".

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Meet Alice

"One day I will have to explain to my daughter that I once begged a gynaecologist to perform a full hysterectomy on me to stop my excruciating pelvic pains".

Meet Maggie

"Having painful periods has always been an accepted norm, and you just have to find ways to cope. Then one day you’re told your lung has collapsed".

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Meet Tanya

"I was gaslighted on my journey. I was told to have a baby at 25 believing that would cure my endometriosis. I was told that endometriosis was common for people of my ethnic group and was common because I was young. I was never told that I’d be getting an ileostomy, I woke up with one completely shocked. No one ever told me about how serious this disease could be".

Meet Khloee

"I came across Carla and her story and joined her group The Endometriosis Foundation where I learnt more about the condition. A few months later I had another gynaecology appointment where I was put on the waiting list for laparoscopic surgery".

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Meet Laura

"I am a triplet, and I am the only one out of the three of us who has this issue. I was offered a full hysterectomy aged 21 where I was told to take it or leave it. I was given just 30 seconds to make my decision, I declined.".

Meet Zoe

"I went back into surgery which took over 12 hours in total where I later come back having an ileostomy (stoma), as well as a c-section type scar incision. When my surgeon came to see me, he explained how the endometriosis was all over my small intestine and how it had infiltrated deep into my back passage".

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Meet Georgia

"Doctors have discovered endometriosis around my uterus, pelvic walls, bladder, bowel, kidney, ovaries, fallopian tubes, urethra, pouch of Douglas, lower nerves surrounding my spinal cord and most recently, my diaphragm. This causes me to not only suffer from pelvic pain but chronic pain throughout my entire body".

Meet Lisa

"I was told following surgery nothing was wrong everything was normal. I then saw another specialist in the pelvic pain clinic who brought up my pictures from my second surgery and she pointed out signs of deep infiltrating endometriosis and adenomyosis".

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Meet Emily

"After each surgery and complication and round of chemical menopause, I was reminded it was going to get tougher and tougher".

Meet Katie

"I was diagnosed with Crohn’s disease in 2018 and endometriosis in 2020. Having two diseases with overlapping symptoms is a struggle to manage, especially when they’re both in the lower abdominal region".

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Meet Katie N

For years I suffered with recurring cysts and Endometrioma’s causing endless infections and inevitably damaging my ovaries so much so that at just 33, I was diagnosed with Premature Ovarian Insufficiency (early menopause).